Hi anyone and everyone with so called “atypical penis fracture/nerve trauma”,
Please leave a detailed account of the CAUSES and SYMPTOMS of your problem, otherwise you help no-one and no-one here can help you.
The main optimistic point is that at least we can contact each other these days with www. I often wonder how it was even 20 yrs. ago, left totally alone with this problem, - I think Id have gone crazy without www. Men with our problems must have been going crazy throughout the last centuries.
Ive been trying to start a group now for a long time – and Im not getting anywhere. If you disagree with the idea of a group, then please tell me what other alternative we have??!! Im now going to take a break for a while. This is simply to give me a break and try something new to see what happens – maybe then others will start taking over.
I believe that isolated and individual we will be as lost as the men pre interet - the chance we have today is as a group.
So many of "us" have been to countless urologists for countless tests - and somehow we and the doctors are not getting results - so what are WE doing wrong that we could do better? - maybe even my naming of atypical penis fracture/nerve trauma confuses doctors?
I feel its no use asking doctors to look at just “me” - the medical world cant be blamed on this subject - they have to think practically - our problem occurs perhaps one in 10,000 - any individual doctor probably sees only one case in his life!
This forum and home page are rapidly becoming a collection of evidence on penis trauma/atypical fracture. I feel our collective need is our only hope (or certainly our main hope) of getting this problem recognised, and researched.
Please contribute to this forum and talk with each other - dont expect me to answer. Please think how a group can change a situation which individually we will never change.
If you disagree TELL ME WHAT OTHER ALTERNATIVE WE HAVE APART FROM A GROUP??!!
I feel what we need is a student Urologist to answer letters on the forum. Students have time to research, and a last year student doing a special research on this subject would be ideal - they are always looking for new subjects to write diploma work.
Im NOT online at home - I dont have the possibility to do internet research. Please leave links and comments on other www addresses which deal with these subjects - so that an index or network of relevant pages can be developed. (Someone recently left a link which enabled me to write to an online urology faculty asking if anyone can help this forum)
Id love someone to spend a couple of hours using their “worry” energy positively to google for medical universities (esp. Urology dept.) and collect 50 or even 10 e mail addresses, ... and then send out spam like invitations to help ...
(with this quote): “Patients with a rupture of the deep dorsal vein of the penis can present with findings similar to those of a penile fracture. Associated swelling and ecchymosis of the penis (“eggplant” sign) is present. .... However, the patient does not typically hear a crack or popping sound. In addition, detumescence does not immediately occur. However, because of similar physical examination findings, a deep dorsal vein rupture should be surgical explored, as it is often difficult to differentiate from penile fracture.”